End of life care Resources

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A Lion in the House DVD Modules for Health Care Education

Primary Author: A Lion in the House, Community Media Productions, Inc.

A compelling set of teaching modules is available from the Emmy Award-winning documentary about children with cancer, A LION IN THE HOUSE. Based on real-life case studies, where things do not always go so well, the stories offer a forum to consider and discuss approaches to helping families navigate life and death issues related to cancer.

The Case Studies in Spirituality and Childhood Cancer Module offers specific, complicated case studies around issues of spirituality during a pediatric medical crisis. The Institute of Medicine defines pediatric palliative care to include the spiritual needs of a family, with a broad view of spirituality as the search for meaning and purpose in life and in death. Many families rely on spiritual resources in times of health-related crises, especially at end-of-life. Yet the majority of medical caregivers do not address issues of spirituality with their patients, with many feeling ill-equipped to do so. This module offers the insight of several veteran pediatric oncologists around spirituality issues.

-Each DVD module contains mini movies shot over a course of six years, competencies & objectives, discussion questions, a recommended resource list, and a PowerPoint presentation.

Date Last Modified 04/01/2010 Video, Case example/study, Clinical practice guidelines, Course curriculum, Website

A Lion in the House SuperSibs Clips

Primary Author: SuperSibs and A Lion in the House

The Sibling Stories video clips and curriculum are free online through SuperSibs!

With major support from the Centers for Disease Control and Prevention, the Lance Armstrong Foundation, and SuperSibs! – filmmakers, Steven Bognar and Julia have responded to the interest from health care providers and educators to have shorter clips available for classroom and in-service education, awareness and trainings to promote greater understanding of the challenges facing pediatric patients, their siblings and their families.

Each targeted educational module comes with unique learning objectives, discussion questions and take-home points. The modules have been designed with input from a team of top experts in their respective fields, who looked at draft after draft to help us refine and improve them. They are for many audiences - medical and nursing students, residents, fellows, nurses, social workers, child life specialists, teachers, spiritual leaders, organization directors and program managers and others.

Date Last Modified 05/03/2010 Video, Course curriculum

A multidisciplinary training program for spiritual care in palliative care

Primary Author: Palliative Care Australia

Complete curriculum materials for trainers including, instructor's guide, slide presentations, videos, vignettes, and handouts.

Requires registration with a free account to access.

Date Last Modified 12/31/2007 Course curriculum

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter

A Time for Listening and Caring Spirituality and the Care of the Chronically Ill and Dying

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

A thoughtful, informative, and practical guide for anyone involved in caring for the seriously and chronically ill or dying. This book covers how spiritual care can be integrated into traditional caregiving. Part one discusses aspects of spirituality, such as presence, ethics, and relationships. Part two delves into a number of specific religious and theological traditions. Part three offers practical applications and tools, including storytelling, psychotherapy, dance, music, and the arts. Part four focuses on patients' stories and reflections.

Date Last Modified 06/01/2006 Book