Palliative care Resources

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A Lion in the House DVD Modules for Health Care Education

Primary Author: A Lion in the House, Community Media Productions, Inc.

A compelling set of teaching modules is available from the Emmy Award-winning documentary about children with cancer, A LION IN THE HOUSE. Based on real-life case studies, where things do not always go so well, the stories offer a forum to consider and discuss approaches to helping families navigate life and death issues related to cancer.

The Case Studies in Spirituality and Childhood Cancer Module offers specific, complicated case studies around issues of spirituality during a pediatric medical crisis. The Institute of Medicine defines pediatric palliative care to include the spiritual needs of a family, with a broad view of spirituality as the search for meaning and purpose in life and in death. Many families rely on spiritual resources in times of health-related crises, especially at end-of-life. Yet the majority of medical caregivers do not address issues of spirituality with their patients, with many feeling ill-equipped to do so. This module offers the insight of several veteran pediatric oncologists around spirituality issues.

-Each DVD module contains mini movies shot over a course of six years, competencies & objectives, discussion questions, a recommended resource list, and a PowerPoint presentation.

Date Last Modified 04/01/2010 Video, Case example/study, Clinical practice guidelines, Course curriculum, Website

A multidisciplinary training program for spiritual care in palliative care

Primary Author: Palliative Care Australia

Complete curriculum materials for trainers including, instructor's guide, slide presentations, videos, vignettes, and handouts.

Requires registration with a free account to access.

Date Last Modified 12/31/2007 Course curriculum

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter

A Time for Listening and Caring Spirituality and the Care of the Chronically Ill and Dying

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

A thoughtful, informative, and practical guide for anyone involved in caring for the seriously and chronically ill or dying. This book covers how spiritual care can be integrated into traditional caregiving. Part one discusses aspects of spirituality, such as presence, ethics, and relationships. Part two delves into a number of specific religious and theological traditions. Part three offers practical applications and tools, including storytelling, psychotherapy, dance, music, and the arts. Part four focuses on patients' stories and reflections.

Date Last Modified 06/01/2006 Book

An Exploratory Study of Spiritual Care at the End of Life

Primary Author: Timothy P. Daaleman, University of North Carolina at Chapel Hill

Article from the Annals of Family Medicine describing a qualitative research study into how spiritual care is perceived and delivered at the end of life. The authors concluded that "Clinicians and other health care workers consider spiritual care at the end of life as a series of highly fluid interpersonal processes ... rather than a set of prescribed and proscribed roles".

Date Last Modified 09/01/2008 Article